The results are in.... and the long story short is:
Her Surgery is scheduled for Nov. 3rd. To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts.
the Neurosurgeon was very nice. She went thru our entire history from prebirth to today asking about all the questions that even MIGHT have relevence.
She had Sarah walk around on her toes and heels and checked out her reflexes (still doesn't have any on her legs) and we looked at the MRI information etc.
The Dr then said that the images show that she does have a very minor bit of spina bifida (she pointed to the area and said "see" which I felt like laughing at... I saw nothing To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts. )
and then we watched the video that showed she has no movement in her spine....
and then the Dr said based on all the information, with the supporting evidence of the potty problems etc, it was pretty obviously a tethered cord and that the surgery should be able to correct most of it.
We scheduled the surgery for the next possible date open which was Monday Nov. 3rd. I have no other info - not even a time yet. To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts.
In our conversation, we also briefly touched on how I felt that *I* had the same issues and felt that whatever Sarah had, I had too.
She was pretty certain that I would find the same stuff on my MRI as Sarah has and I told her how I had just had an MRI done and they totally To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts. everything. She laughed and said "they've probably never actually seen a tethered cord there" and went on about how they were wrong to just blow me off like I felt they did and she said that after Sarah's deal is all said and done, to send the images to her of me... and she would look at them too. To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts.
wouldn't that be amazing?!?!?!?
Finally someone who can/will do something about my own problems!
She said that while my potty problems probably wouldn't go away because they've been problems for so long... too long... the nerve damage is done, that some thing would get better AND that for sure my back pains would go away. To view links or images in this forum your post count must be 15 or greater. You currently have 0 posts.
totally exciting news.
so now we wait another 3.5 weeks .....
__________________
Karen -
DH Phil
DD Sarah Joan (6/1/01) To view links or images in signatures your post count must be 15 or greater. You currently have 0 posts.
DS Andrew Skyler (2/28/03) To view links or images in signatures your post count must be 15 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 15 or greater. You currently have 0 posts.
"A little nonsense now and then is relished by the wisest men" --- Willy Wonka (okay, Horace said it first To view links or images in signatures your post count must be 15 or greater. You currently have 0 posts. but nobody these days knows Horace) |