Skip to main content
Baby Corner logo

Latest with Alex

Reply Post New Topic

  • Dopey406 Dopey406's Avatar 01-26-11 | 09:21 PM
  • The nurse called me yesterday and explained that our doc and the Alabama doc both suggested that Alex have an MRI of his calves, thighs, and pelvis. They want to see if he's having fatty replacement in the muscle tissue. I asked if they're working toward the same diagnosis as before and after consulting with the doc, she said that they are indeed still thinking that it's congenital muscular dystrophy.

    They said that I should remember that 40-60% of patients never get a "positive" gene study, so we can't rely on genetic confirmation to make a diagnosis.

    After the MRI, we'll decide what step to take next. It'll likely involve more blood work and genetic studies but I'm glad that the neurologist wants to get to the bottom of it.

    So we're waiting for the central scheduling folks to call us to get the MRI on the calendar and we'll move forward from there.

    Thank you ALL for being so kind and encouraging. It really does help and it certainly helps me continue seeing this glass as half-full.
  • teddybear1082 teddybear1082's Avatar 01-26-11 | 09:55 PM

    My thoughts and prayers are with you. Hopefully you will be able to move forward with a plan soon. Good luck with the next round of tests.
  • 3Princes 01-26-11 | 10:10 PM

    Thinking of you and Alex.
  • lauralkemp lauralkemp's Avatar 01-26-11 | 10:18 PM
  • Well, while it's not great news at least having a diagnosis means that it will have a treatment. Thats always something to be glad about. ( I sound like Pollyanna). Still sending prayers for you all Deanna.
  • momofthreeboyz momofthreeboyz's Avatar 01-26-11 | 10:21 PM
  • Many thoughts & prayers from me as well.

Latest Articles

Pregnant Woman's Guide to The Zika Virus
Get the latest information about the zika virus during pregnancy including how to protect your unborn baby or infant, signs and symptoms, complications, and prevention.

Fetal Development Video
Video showing how a fetus developed during the 40 weeks of pregnancy. Fetal Development Video

Adventure Vacations with Your New Family Are Possible
If you spent time as a couple exploring vast areas of the world, that doesn't have to end just because you have a new baby. Here are 6 tips to make your vacations fun for the whole family. Plus, vacation ideas to help you get started.

The "Mozart" Effect: How Music Helps Your Baby's Development
Can your baby really be smarter if your listen to Mozart, or other classical music, during pregnancy?

What to Expect Postpartum: Your Period
The postpartum period brings many changes to a woman's body. Learn what to expect with your period including when it will return and warning signs to watch out for.

July 2018 Baby Photo Contest Winner

July 2018 2017 Baby Photo Contest Winner
Congratulations Willow!!