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Another Ethan update

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  • Carolyn23g Carolyn23g's Avatar 09-30-04 | 10:37 PM
  • Finally some good news on Ethan. He was seen by a pediatric opthamologist and finally we have ruled out Hermansky-Pudlak Syndrome (he has a bleeding disorder that is also seen in that syndrome.) Whew! His eyes looked good, except he was a bit less farsighted than most toddlers his age, and will probably end up in glasses for nearsightedness in a few years (just like Mom and big brother.) Poor guy has been battling a stomach virus (and now Noah has it) and has had three doctor appts this week - plus one more tomorrow. I've been pulling all of his labwork together and will be reviewing it with the immunologist - hoping for answers still but seems like I keep ending up with more questions. Anyhow, potty training is slowly progressing. I really want to switch to underwear (been doing pullups for a while) but with all the illness, and if history is any indication he is usually sick almost nonstop from late Oct to early April, so I may wait. He is quite the chatterbox, and lately has taken to calling me "honey". He loves to role-play, and usually he is Mommy and I am "honey" - (or I am Ethan). His other one is that he is the doctor, and I am Ethan. It gives him a way to express his feelings about all the stuff he has going on, so I tolerate the checkups (which can be quite interesting - ever had your tempature taken with a book, or your ears checked with lollypops? ) He had to come to work with me the other day when he was sick and I couldn't miss work, and even ill he charmed everyone.
  • Mellie Mellie's Avatar 09-30-04 | 10:56 PM
  • Glad to hear that Ethan is doing better! Hopefully the new immunologist will have some fresh perspective and get an answer for you. We're still at a stand still on potty training too, going to start a new "attack" in November.
  • skyqueen skyqueen's Avatar 09-30-04 | 11:06 PM
  • good news! I hope the next specialist appt goes well too!

    what a charachter you have...
  • NicholeMatthew NicholeMatthew's Avatar 10-01-04 | 12:08 PM
  • Sounds like good news! I hope the specialist appt goes well!

    Kevin is doing the same thing... I'm Kevin and he's Aiden... Such characters..

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