I was wondering how the tethered cord surgery worked for Sarah? How are her potty issues?

thanks for asking.

Its been 6 months now since her surgery (the beginning of November)
We've seen the neurosurgeon 3x since then and I think we are no longer on her list to go back for postop checkups.
the last checkup a month ago showed that she had regained her ankle reflexes back and had a hint of regaining her knee reflexes back.

I believe about 6 months is when regeneration slows down to almost nothing and by 1 year, there is little hope of any further regeneration at all.
Given that, I know that things definately improved some, but I won't exactly know how much for a while longer.

Her potty issues are better. She had a little relapse a couple months ago with 2 back to back UTIs that were very hard, but since then, she has done much much better and I can say she hasn't had a daytime accident in a little over a month now!
she is still wet most nights but I couldn't care less about nighttime potty training really. She can wear a "goodnite" every night until she is old and grey and I wouldn't care as long as she stayed dry during the day.

I can tell listening to her go pee that things have changed. Just the noise she now has while going pee tells me that she is able to hold more pee in her bladder and I know that she has better control over when she can hold and when she can release.


she is still learning how to 'tell' when she has to go, but she's definatly much better than before the surgery. Much.

All in all, it was a great success. She has a small nearly 1 inch long scar on her lower back that is pink but not too ugly looking. (and it'll fade as she gets older I'm told)
I think all that is left is to now do the actual potty training like a 2 year old. (which we are) as she builds up her muscles and learns to hear the new signals.
So far so good

That is great to hear Karen

I am glad she is progressing well.

Its great to know the surgery was a success.

Where was the nerve that needed to be repaired? I don't have potty issues but my left knee reflex is wonky and my left foot is almost unbearably ticklish due to whatever nerve I have that is bad. It would be interesting to know if it was related.