so, after getting the directions from the pediatric urologist to 'unclog' her bowels and all that jazz... I've been working hard at following the regiment.

Sarah is now almost to week 2 of the bowel adjustment.
the first couple days, she had bowel movements, but they were 'solid'. then for the next 7 days she's had very soft peanut buttery BMs and she has been missing the toilet about once a day. (sometimes more) and instead, she goes a big ol' mess in her underpants.
It's been rather frustrating to say the least.
Her pee pee issues don't seem to have changed at all, though.
She seems to still have the immediate urge and an almost accident chronically despite being obviously 'unblocked' via the poop canal.

so we'll be seeing the urologist again in just over 2 weeks and she'll have another x-ray done at that time.

I'm feeling more and more confident that her issues are beyond the bowels being full and that perhaps those issues are also related to the Pee issues. (she has never known when she has had to go poop either really which hasn't been a problem considering it was difficult and infrequent for her up until now)

At this rate, I wouldn't be the least bit surprised to find that she has a bit of a tethered chord.

I hope that you guys work everything out. Poor Sarah. At least you have the summer now to hopefully get it all figured out. I don't know what a tethered cord is. Is it a major complication?? Sounds like you've been doing some research on everything and I hope the doctor works with you and your suggestions.

a Tethered chord is part of the spinal chord is 'tethered' in the spinal column which prevents the signal from moving up and down the chord.

Most people who have this usually walk clumsily or on their tip-toes or have other physical problems aside from the wetting problems (which are usually prevaliant in the abnormality).
Since Sarah doesn't seem to have the physical problems walking etc , the Drs don't jump on that diagnosis.

I hope it all works out soon.... what a roller coaster for you all!

How frustrating. I hope the next appt gives you answers.