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Idiopathic Toe Walking

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  • JNyte 09-06-12 | 02:43 AM
  • If you don't mind, how old is Sarah? and is the toe walking constant or occasional? I'm curious because my son tends to do it too but because he has Autism doctors tend to just write things off as being a symtom of that. It wasn't until he was 6 years old that we realized he has an indented sternum and a smaller than normal pinky finger.
  • Dopey406 Dopey406's Avatar 09-06-12 | 07:57 AM
  • Sarah's 9 years old. She's been walking on her toes off and on since she learned to walk but it has become her only mode of ambulation in the last year.

    Our son has an undiagnosed connective tissue disorder and I've learned that as a mother, you just have to advocate without regard for your own ego when it comes to your children. You can't put your ego or anything else ahead of what your gut is telling you about your child. Discuss( with an open mind) with your doctor your concerns about your child but don't necessarily trust just one opinion. If you're not pleased, seek another professional.

    Welcome to TBC.
  • Patience Patience's Avatar 09-10-12 | 01:17 PM
  • Just saw this. Haven't checked in in ages! So happy to hear that Alex is doing so well. That is fabulous news. I hope the PT is going well for Sarah. We went through the exact same thing last year for Milo. He has always preferred walking on his toes, but since we now have all hard wood floors, his toe walking got much worse and we sought treatment.

    We did PT twice a week and he wore the night splints for about 3-4 months. It did wonders, but unfortunately it has been 6 months since he was discharged, and now he is back to tight muscles and toe walking here and there. It is better with shoes on, but we've even seen him walk on his toes with hockey skates on. LOL! It is a serious urge for him.

    One thing we are working on now is getting him "toughened up" sensory wise on the bottom of his feet. We think his toe walking stems from a sensory issue, as it is much improved with shoes on, when he doesn't "feel" every bump, crumb, etc...

    Best wishes. It isn't easy doing the PT, especially at home. Especially when it hurts. I also highly recommend encouraging a sport/activity that stretches those muscles naturally. Milo does best when he goes to karate 2 times a week, as he stretches the muscles without realizing it.

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